So...Lucas needs open heart surgery. He had a sedated echocardiogram on Thursday where he was put under to carefully evaluate the anatomy of his heart. Turns out he has something called an ASD -- basically a tiny hole between the upper chambers of his heart. It needs to be corrected to ensure it doesn't pose a future threat.
What does this mean? Open heart surgery, old school -- plasma and blood donations in advance, a night in the ICU, 5 days in the hospital and another week at home recovering, oh, and of course, a big scar to remember it all by. The cardiologist wants to wait until he's 2 years old (or older) because it decreases his recovery time. We're getting a second opinion. This blows. To look at him and watch him light up a room, you would never suspect this imperfection. Like many kids with Down syndrome, he has a congenital heart defect -- ASD is the most common in people with DS -- but luckily, the success rate is extremely high and although lengthy, it's a fairly straight-forward operation. As a parent, you never want to hear "heart" and "surgery" in the same sentence, but alas, here we are. Did I already say this blows? Anyway, we will be getting a second opinion shortly and keep you updated. Please pray for our little man, and for his currently stressed-out, overwhelmed parents.
4 comments:
You know your whole family is in our thoughts & prayers. Much love... Christian, Steph, Gracie & Oscar
My prayers are with Lucas and your family. First and foremost, I wish your second opinion is a more positive one. NO matter the outcome, Lucas looks like a fighter and it is amazing how fast kids can heal with the love and support of great parents. Keep your head high and take it all one step at a time.
G-d bless!
Arie
Take a breath, love your child and husband...let them love you, and know that we will be there for you when the time comes. In person if you want!
LA FE ES UNA DE LAS VIRTUDES MAS GRANDE QUE TENEMOS LOS SERES HUMANOS. USTEDES SIEMPRE ESTAN EN MI MENTE Y ESPECIALMENTE TU HIJO EN MIS ORACIONES. EN UN TIEMPITO VEAS ATRAS Y SOLO LO RECORDARAS COMO UNA EXPERIENCIA MAS. TE QUIERE Y SIEMPRE RECUERDA. LEONARDO PEREZ-HERRERA
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