Tuesday, April 28, 2009
Sunday, April 26, 2009
I immediately called my dear friend, Kerra, whose now 4-year-old daughter Krysta spoke in 2-3 word phrases at two. Kerra assured me not all kids with DS speak at a much later time, and as a result, we promised ourselves we'd do everything possible to give Lucas the tools he'd need to communicate with us as soon as he was willing and able to. We enrolled him in weekly private speech therapy, in addition to two 30-minute speech sessions provided at school. We've worked with him at home, carrying over the strategies taught to us by his loving and dedicated therapists -- Angelique, Mariel, and Colleen.
This past week, Lucas' speech has been blossoming...his favorite word now is "no" -- sometimes said softly, coyly, and other times said with great passion and decisiveness. His therapist Mariel taught him to say "I" and sign "want" which he picked up immediately, and is using nearly every moment of every day to get his way. We're now arguing because the boy knows what he wants, when he wants it. I will post video soon so you can see for yourself.
I wish I knew then what I know now...that, my friends, I'm certain will become my anthem on this unexpected journey.
Thursday, April 23, 2009
Serving all the standards for breakfast (cafe con leche y huevos revueltos), lunch (media noche y batido de mamey), and dinner (vaca frita o lechon asado con moros y maduros) and open around the clock. You can even get a "cafecito" on the run at the walk-up window and "pastelitos" (Cuban pasteries, usually with cream cheese, guava, coco, etc.) at the Versailles Cafe adjacent to the restaurant. It's something else. We took Jenni and Rob for Rob's first experience. Check out Lucas making eyes at the pastelitos. Oh and don't forget the mojitos...
Wednesday, April 22, 2009
Friday, April 17, 2009
Has anyone on the planet NOT seen Susan Boyle sing her heart out on "Britain's Got Talent" -- if you haven't do it NOW. She sings the very difficult, very moving "I dreamed a dream" from Les Miserables. I just checked and her video has garnered more than 22 million hits on YouTube...that's right MILLION. I picked up the piece below from Patricia Bauer's blog which I visit frequently...bottom line here is not to judge a book by its cover,; something Lucas and all people with disabilities will struggle with their entire lives. Bravo, Susan!
By now, just about everybody has heard about Susan Boyle, the plain Scottish spinster whose extraordinary singing voice dumfounded the judges of a British talent show this week. Videos of her thrilling performance on “Britain’s Got Talent” have gotten more than 18 million views on Youtube, and she is already reportedly in talks with a record label.
But what many may not know is that Boyle, an unemployed church worker who cared for her elderly mother until her death two years ago, has a lifelong history of disability. Boyle says she has learning disabilities, the result of oxygen deprivation at birth, and was bullied in school because she was slow and had frizzy hair.
“The ones who made fun of me are now nice to me,” she told CBS News, “so I may have won them round.” She said she hopes her arresting debut on the TV talent show will remind people not to judge by appearances.
(Photo from the [UK] Times)
UPDATE: From Deadine Scotland:
[Boyle] says she hopes the show will highlight her disability too. She said, “I was slightly brain damaged at birth, and I want people like me to see that they shouldn’t let a disability get in the way. I want to raise awareness — I want to turn my disability into ability.”
Wednesday, April 15, 2009
Sunday, April 12, 2009
Thursday, April 9, 2009
- Mama (doesn't use it nearly as often as "Daddy")
- Titi (what he calls my sister)
- Done (for "all done" eating, playing, etc.)
- I (signed with "want" and whatever he needs...such as his new favorite, yogurt)
- Bye bye
- He uses animal sounds including moo, baa, panting (for dog), *ay (for nay), sss (for snake), and a whole host of made up sounds for rooster, pig, chicken
Wednesday, April 8, 2009
Anyway, our trip was fabulous and we had an opportunity for some R&R and to reconnect...awwww...isn't that special!? Seriously, although we both had to fight back tears on occasion since this was our first trip anywhere without Lucas, it was really great for "us" and everyone is better for it. Here are just a few pics, including 1) "happy anniversary" desert from Pink Restaurant in Savannah (yummy!), 2) Tom in one of the 22 squares in Savannah's historic district -- lots of Spanish moss everywhere -- 3) us on our anniversary dinner at Sapphire Grill (super yummy!), and 4) my pink toes showing off our lovely poolside/beach-front Westin Hilton Head hotel.