Sunday, November 15, 2009

Children's Alley

There was lots to do this past weekend, including the yearly Miami Book Fair International. They have a wonderful "Children's Alley" especially suited for small kids with lots of activities, which included opportunities for Lucas to plant his own tomato seed, decorate a pot, lots of coloring, and even visits with favorite characters. Lucas enjoyed meeting Clifford the Dog and was loving the Dr. Seuss exhibit (mostly because he wanted a hat of his own). We picked up several new books for Lucas while we were there.

Sadly, Lucas use to love Tom's favorite all-time story "Where the Wild Things Are" but in the last 6 months or so, his "fear factor" has really kicked in so he freaks whenever Max makes it to the land of the wild things (that's usually as far as we make before he starts screaming "no!" at the top of his lungs). Don't let the picture below fool you...he was okay when he first saw "wild thing" but the moment he tried to make contact with Lucas, well, that was that!

We finished the morning off at Bubba Gump's in Bayside where Lucas decided to become a fan of Daddy's caesar salad.




Potty Training Update

In true Lucas form, he's doing his own potty training. We've been talking about it for months now (since he was 31 months and first showed real interest in the potty) and now we're planning the 3-day potty training boot camp to start on "Black Friday" -- the day after Thanksgiving. But, in the meantime, Lucas has started to go on the potty at school 2-3 times a day (every time he's put on the potty), although his pull-ups are still wet when he gets changed (maybe he's like his Dad and has a small bladder :)

Anyway, here's "proof" of his potty achievement -- the daily report from school. I realize I've been MIA, but I now have lots to report about so check back soon for more.

Tuesday, November 3, 2009

Lucas at 36 Months AKA 3 Years Old!

We've had a very exciting couple of months since my last entry (at 34 months) since Lucas has accomplished some key educational milestones. He now knows all his (primary) colors...black, white, brown, red, blue, green, yellow, orange, purple, and even pink. Another pretty amazing thing happened right around his birthday...I bought him foam bath letters and decided to ask him to name letters in the bath in random order...the kid knows ALL the letters (and with good articulation too)! We've been using Starfall with him since he was an infant and it's obviously paid off. He also likes singing the alphabet song, although he does that in chunks (a,b,c,d,e..... n,o,p,q,r....w,x,y,z). We're capitalizing on his interest in letters and books so we've started more sight reading and that's coming along too...he probably knows about a dozen sight words. He is expanding his vocabulary and starting to use more 2-word phrases such as "open door" and "let's go" and "puppy Roscoe" and my favorite..."thank you" (what a polite child!); he's also starting to say "U-cas" (Lucas). The other big deal is he can count to 10 -- we're working more on getting him to count "things" so the numbers have real meaning.

At the Debbie School, they conduct the Battelle Developmental Inventory right before kids turn 3 (it's a Miami-Dade County requirement) and we received Lucas' scores...we are thrilled he is performing "within normal limits" in all areas of development (on the lower side on a couple, but he's above average in the "social-emotional" area -- not a big surprise there). The sad, double-edged truth of the matter is that when his godmother (who happens to be a developmental specialist) saw his scores, the first thing she told me was "he'll never qualify for services with these scores." It still amazes and confounds me that this can be true when a child has a qualifying medical condition -- and although performing exceptionally well for a child with a disability -- is still NOT performing on par with his typically developing peers. Whatyagonnado? Fight the power! Okay, off my soap box.

Lucas is blowing bubbles, whistles, and even a recorder (you know, the "instrument" we played in elementary school)...he blew out his birthday candles this year which was very exciting! He is wearing his glasses now most of the time -- he takes them off and puts them back on...I guess he's finally started to see the light (and everything else)! What isn't so exciting is that Lucas is getting more stubborn and more theatrical...he's not as easy going as he use to be and now often wants to do things when HE wants to do them, not when he's told. He loves telling us "no!" He's enjoying taking showers (with Daddy usually) and even washing himself including his hair (with help). He's also enjoying more pretend play.

Lucas is one of the most social/friendly kids you'll ever meet...which is characteristic of kids with Down syndrome (although I hate generalizing and labeling since each child is different and unique, I can't ignore this attribute which seems fairly consistent with kids I've met -- I happen to think it's a fabulous trait when properly channeled). He makes friends -- both adults and kids -- wherever he goes. Since he's the only child in our home (his big sister is 17), one of the best outcomes of school is Lucas is learning to defend himself and he can fearlessly insert himself in the middle of a play situation, even with older kids. Whether brave or crazy...it works for him!

In the fine motor skills area, we're working more with playdoh and finger paints. We've established Lucas is a righty (sorry to my left-handed husband). He can copy a straight (although short) horizontal or vertical line. He eats with both a spoon and fork (although he's really messy and still likes to use his free hand for help). Lucas is learning to use a scissor (the kind that closes on its own) and is experimenting with glue (watch out!). He still needs to be reminded what surfaces he can color on (at least he got "not the wall!"). We're starting to do more simple craft projects with him.

As for gross motor skills, his physical therapist has Lucas working on navigating an obstacle course, alternating legs going up and down stairs, and riding a tricycle. He's still working on jumping -- and we still need to pick up a trampoline to help with that (they're pricey!). He can catch and throw a large ball...we're working on smaller balls now. He's kicking both big and small balls about 5-7 feet. He's enjoying the playground more and can go up a ladder to get to a big slide and goes down by himself -- this is big for Lucas who can sometimes be overly cautious.

His favorite things to do now are "reading" books -- in fact, his teacher just told me Lucas conducts reading circles at school where he pretends to read a book while other kids listen in; he also likes surfing on the computer (not quite), playing with Roscoe and the kitties, bowling, and, of course, Signing Time AKA "Rachel" -- I tell you, the kid is obsessed, but he's learned so much -- we limit his viewing time to about an hour a day (2 episodes).

We're still a no-go on the potty training...which I vow to tackle before Christmas!

All in all, we're so proud of all the milestones Lucas has reached this past year and look forward to more steady progress and more good times ahead!

Sunday, November 1, 2009

Happy Halloween!

We had a great (but exhausting) Halloween in near 90 degree weather...that's South Florida for ya! Lucas really enjoyed the trick or treating, especially since Daddy carried him most of the way. It was our first time dressing up as a family -- Lucas as a Zen master, Tom as a samurai (doesn't Tom look a little like Steven Segal? maybe it's just the white man in a kimono), and me as a geisha...it was fun! We went to our friend Liz's development where we got energized on pizza with other friends before the hunt for candy. Oh, don't miss my homage to "Twilight" with my pumpkin carving; the other pumpkin is Tom's masterpiece. Hope you had a great Halloween too!











Tuesday, October 27, 2009

Birthday Party

Sorry it took me so long to post, but here's a quick video of Lucas' little birthday party at school. He had a great time, and, as you'll see...he was determined to swipe Mickey!

Thursday, October 15, 2009

Happy 3rd Birthday, Lucas!

Our big boy is three today! I can hardly believe it. It's what everyone says, but you've got to live to understand...they grow so fast, too fast. Every day more, Lucas becomes more vocal, opinionated, and independent...like it or not, my prayers are being answered.

I ran into a woman in the elevator recently who asked me if Lucas goes to the Debbie School, and I said "yes" -- she said, it seemed like only yesterday her son was there too...she followed up with "he'll be in high school before you know it" -- I know that much is true.

Today, we'll celebrate with Lucas' school friends with Mickey Mouse cupcakes, and tonight, what else? Presents! I promise photos later.

Here's my yearly tribute to Lucas...I love putting this together each year and reflecting on all the fun times and the wonderful people who fill our lives with love, encouragement, inspiration, and support. I couldn't resist the Josh Groban tune, and I'm not apologizing for it! So turn up the volume, pull out your tissues, and help us celebrate our big hunk of love...

Friday, October 9, 2009

48 Hours Later...

We have not one, but TWO casualties of a nearly three-year-old.  Lucas has been getting more accustomed to the glasses and it's obvious he can see better, but he's still playing with them, and as a result, he's broken both his school pair and his home pair.  Jeez.  We're taking the two pairs back to For Eyes in the hopes they can get fixed, and to see if the optician can get a better fit for Lucas which hopefully will encourage use.  Stay tuned.

Thursday, October 8, 2009

I'm Down with You

I absolutely love photography, and am especially fond of powerful portraits.  One of the moms on my frequently-visited bulletin board posted about this beautiful collection of portraits of people with Down syndrome -- her precious daughter, Eliza, is featured in the I'm Down with You gallery.  All proceeds from the book sales as well as the photographer's royalties, will be donated to Down syndrome organizations.  There are only about a dozen photos, so take a quick look...you might be captured by them as much as I was. 

Wednesday, October 7, 2009

For Your Eyes Only

Okay, so once again, we're giving glasses a try.  This is officially Lucas' FOURTH pair, and he's not even THREE yet...holy smokes!  Anyway, Tom and I took Lucas to Bascom Palmer (a part of the University of Miami where I work, and the number one eye hospital in the country).  After waiting four hours (that's not a typo)...we finally got in to the pediatric ophthalmologist who told us Lucas' nystagmus is improving, but his vision worsened -- Lucas is near-sighted or myopic -- his prescription is 6.25 and 4.50 so we're hoping he really "sees" the benefits of keeping his glasses on now.  Poor baby, when we go to the zoo for instance, we can tell he's looking for the animals, but they're just blending in with the background.

Thanks to a tip from my friend Kerra, we went to For Eyes where we scored two pairs for $129 (as compared to the usual $300 at Miami Children's Hospital rip-off of a clinic).  Here's Beanie with his first experience with his new glasses.  Keep your fingers crossed these do the trick!



Saturday, October 3, 2009

October is Down Syndrome Awareness Month

What better way to start my blogging for Down Syndrome Awareness Month than by paying tribute to Pablo Pineda?  Pablo won the best actor award at Spain's San Sebastian Film Festival for his role in Yo Tambien ("me too").  He portrays the character Daniel, who like Pablo himself, earned a college degree (the first person with Down syndrome in Europe with a college degree) -- the story follows Daniel at his first job where he falls in love with a colleague.  I look forward to seeing the movie and hope it hits the states soon -- it will be released in Europe on October 16th.  Bravo, Pablo!